My Whac-A-Mole Life: Bullying   

Things Aren't Always What They Seem: A Lesson in Generalization

One afternoon, my boy nonchalantly relayed this story to me:
Child X is playing a game on his laptop, and Children A and B are oohing and aahing over his shoulder. My curious son joins in to watch, but Child X covers his screen and says:
"You can't watch me play. Go away."
OUCH! My bully radar soared to red alert; my fangs and talons were itching to strike. Yet, I tried to remain calm and rational. I took a breath, and reminded myself that things aren't always what they seem.

I probed a bit: What EXACTLY happened...How did that make you feel...What did your friends do/say...Why do you think he said that...Who the hell is this rotten kid anyway?

At this point, I started to get a bunch of I don't remembers followed by a Can I please just play my game now.

Between you and me, let's just agree that kids aren't so smart. How could they be? They're uneducated, totally inexperienced, and have underdeveloped, unseasoned brains with absolutely no context for their thoughts. Now, pair that fact with the idea that a number of children with autism - as well as some other neurological conditions and learning disorders - struggle with "generalization."

Generalization, as I've come to understand, is the ability to apply something you've learned across settings, circumstances and situations. A common example is: You teach a kid not to cross the street alone. Does the child understand that lesson applies to all streets or just THAT particular spot on THAT particular street? It's an extraordinarily different way of thinking.

You know what makes generalization even more challenging? Rules. Especially rules with exceptions or inexplicable, social expectations. So now, you tell him, go ahead and cross that street when the light changes. Or at the crosswalk. Or if you look both ways. Or if there's a guy wearing a yellow hat waving you over. OH MY GAH, it's so confusing!

With that mindset, a kid so easily could "disobey," get it wrong, or just meltdown at the thought of trying to keep up with all these street-crossing regulations.

How revealing it can be when children actually explain their unorthodox behavior - which, often, seems completely rational and logical in their own minds.

For example, it was driving me batty that my OCD-stricken son's hands always were wet. He was struggling with classic germ phobia, and was washing them A LOT. (I'm pretty sure patterns and rituals were involved, but he's stealthy about that.) Of course, I assumed he simply forgot to dry his dripping hands. When yelling didn't fix that, I then got him to agree that it was because he didn't think the towels were clean enough (I get that), so I fancied up his bathroom and mucked up the environment with disposable hand towels. He still dripped all over the place.

Finally, when the lights were low and the mood was right, he explained that, since our treatment plan involved restricting hand-washing, as well as limited discussing and reassuring him of cleanliness, he prefers to keep them wet because then he is sufficiently reassured that they are clean. Oooooooooh, of course.

Similarly, my friend over at Snagglebox (who just wrote a fantastic post about literal thinking) shared this anecdote:
My son tells me that he finds playing tag stressful because, "When you touch somebody else to make them 'it', technically the energy is bouncing back and forth between your bodies as you touch. So how do you know who is actually 'it' when you let go?"
Guess who probably avoids playing tag...and imagine how this would play out if he couldn't explain himself. 

Does your child also suffer from "perceived injustices" (a term I borrowed from my friend at Try Defying Gravity)? My son once spent a year snubbing a really, sweet kid (who had absolutely no idea he was being snubbed, mind you) for something quite innocent he said that my son found hurtful. He told me about it years later. And this is my verbal child!

My daughter is required to navigate the world without the ability to express herself or explain her behaviors.

We were having lunch at a particular friend's house last week for the first time in several years. My autistic daughter went all Taz on us - screaming, running around like a whirling dervish, and repeatedly asking for dessert. (I was reminded why we don't have lunch at friends' houses more often!)

However, using my parental telepathy, I finally figured out what was going on. Last time when we were at this home - maybe 3 years ago - she was served a particular cookie. Clearly, she wanted/expected that same cookie to be served again. Because - in her orderly brain that seems so chaotic to the rest of us - that's the pattern established in her memory. This house = delicious cookie dessert. That's the rule. Unfortunately, others probably just see an out-of-control kid.

Now, let's circle back to the brat bullying my son. You'll never believe what really happened. Miraculously, my little talk with my son paid off. He returned to school, and somehow "discussed" the situation with Child A and Child B. Together, they approached Child X, who apparently meant no ill will. He was simply following THE RULES.

What he said: "You can't watch me play. Go away."
What his mother had told him: "Don't let anyone you don't know use your computer or watch you work on it."

Child X (in another class) already knew Child A and Child B. He'd never formally met their other classmate - my son.

Oooooooooh, of course. See? Things aren't always what they seem.

We Are Here: A Community Mobilizes To Help Its Own

A few months ago, I started writing my story in the form of this blog. I didn't know then and still do not know where it will lead me, but along the way I discovered a fulfilling, new community of friends. We live across America and across the globe, and we speak to each other daily in 140 characters or less.

Since most of us are connected as parents of children with special needs or even as inspiring adults on the spectrum, we have a bond of empathy and shared experience, so 140 characters is all we need (and we don't have much time for more).

When we have more to say, we often blog it. When I logged into Blogger for the first time, I had no idea - or maybe just didn't really care - that I was pretty much entering a foreign country with its own politics, language and monetary system (think likes, retweets, follows and sponsors instead of dollars and cents). However, perhaps because membership in this particular niche is so bittersweet, this community embraces newcomers warmly, even though they might need some TSL lessons first (Twitter as a second language).

The truth is that many of us feel more connected with this empathetic online community than we do IRL. So while I had no intention of taking on yet ANOTHER cause in my life beyond those living in my house, I am motivated to do what any good neighbor does - help in times of need. I also have adopted the group zeitgeist. One person's outrage becomes group outrage, and we all know that hell hath no fury like an online community scorned.

Today, I am sharing two important posts that have changed my worldview just a little bit. Both were generated by my fellow bloggers who know:

1. The stylus is mightier than the sword.
2. The world is a rough place - especially for those struggling to navigate it --but we've got each other's back.

Take a look:

When Teachers Are The Bullies: It's About Dignity
Please watch Akian's story. It's hard. You probably will cry. You will be outraged. It's what keeps me up at night. (Metaphorically, of course...we all know that I have two actual, crazy kids keeping me up at night. But this too!) Still, I implore you to watch. How is is possible that people like this are teaching children? It's about dignity!

Calling All Bloggers: To "I Wish I Didn't Have Aspergers" - An AutismPositivity2012 Flash Blog Event
Whether you believe you are a qualified participant in this Autism Positivity "Flash Blog" or not, take a moment to think about how you would respond to this person...or to any person who expresses that they wish they were someone else. To someone who must live with an unwelcome identity that they cannot change. I can't wait to read all of the wonderful blog posts next Monday. I have no idea yet what I will write, but I so badly want to do it. After all, one day this could be my child.


I hope and pray that Akian's family and the nameless Googler  -- as well as all those whom they inevitably represent -- find some comfort, support and camaraderie among this amazing community, just as I have.

When Teachers Are The Bullies: It's About Dignity


Originally posted on Yeah. Good Times. Republished on
My Whac-A-Mole Life with permission.

Note from Jill Smo: Feel free to reprint this post anywhere you like, just please include the links to the sites I have at the bottom. I don't need to be credited for it, but Stuart does. 



Outrage for Akian: It's About Dignity
I know I said I was tired of talking about autism, but this is something I just can't stay quiet about. 

I've spent a lot of time here talking about how one of the most frustrating things about autism, for me, is that when Child 1 is upset, he has so much trouble telling me why, that oftentimes I just won't ever know. When he comes home from school upset, which luckily doesn't happen often, I will do anything and everything to try to find out why. Can you imagine if your sweet and happy autistic child started getting aggressive at school for no reason, how much you would try to find out why? Do you know the lengths you would go to for your child? I would do whatever it took, I can tell you that. Whatever it took.

I saw a video today, posted on reddit. It was of a father whose sweet and happy autistic child, exactly Child 1's age, suddenly started getting aggressive and violent at school and he had no idea why. They had IEP meetings, they met with a Behaviorist, he worked the system just like he was "supposed to," for 6 months. But when he got nowhere, he played a hunch, put a wire on his kid and sent him to school to record what happened there.

It turned out that his son, Akian, was being verbally abused by his teacher and aide in his classroom. I'm posting the video below, but I have to warn you that it is VERY upsetting. I had a hard time getting through it all, but I will sum it up for you.

It's mostly Akian's dad, Stuart, describing what happened, and you also hear some of the recording of the horrible things those people say to him.


They called him a bastard. These adults, whose job was to protect and help and teach children... they laughed at him, made fun of him and called him a bastard.  I'm horrified by this.

Stuart turned his recording over to the school district, and also the media. An aide was fired but the teacher was not. The school district has said that it has handled the matter appropriately and apparently they think the matter is closed.

Stuart doesn't think the matter is closed. In the video he says directly to the adults involved: "I want a public apology for what you did to my son. I want your full name out. I want you to come forward. I want you to take responsibility for what you do and then I want you to resign.... Not for me, but so one day I can play this video back for my son and say, 'Akian, you didn't deserve anything that happened to you. These people are at fault.' I'm not looking to sue anybody. I'm not going to file a lawsuit. It's not about money. It's about dignity. This is to reclaim my son's dignity. You owe it to him."

Let's help him get the word out. Below the video I'm posting some links where you can get more information. 



***Note from My Whac-A-Mole Life: To really experience this video, you actually have to watch it. There are subtitles and captions that you will miss if you are just listening.




I'm turning off commenting for this post, because this isn't about me. Also, I want to be clear, and Stuart was clear in  the interview that he did for his local Fox affiliate, that this isn't about the 99% of teachers who are great at what they do, this is about the 1% that aren't, and I don't want this to turn into a discussion about education reform and teacher unions or any of that bullshit. If you want to comment on the video, get more information or give Stuart your support, please go to the Facebook page and do it there.