My Whac-A-Mole Life: All Kids Do That   

Birthday Shopping Spree

Our little Goldilocks recently turned 9. We opted not to stage a huge party, because that's the last thing she'd want. And her "friends?" They'd hate it too. So we focused on the important things: Cake (of course) and presents.

However, when a person's dream day involves a trip to the dentist followed by bloodwork (See Obsession Safety Checklist)....well, it can get tricky.

I previously wrote about this atypical parenting challenge here: What Does Little Suzie Want for Christmas?

So, here we go again. Of course we want to make the day special for her, but if we push our ideas of what she SHOULD want on her 9th birthday - even inadvertently - she'll only be frustrated and disappointed.

Do you remember your 9th birthday? Any of your childhood birthdays? The best ones were those where we felt special and celebrated. Sometimes that coincided with receiving a Barbie Dreamhouse. Or a Matchbox cars set. I posit that the warm memories remain not because we received an ephemeral gift, but because people listened to us, understood us, and cared enough to validate us with a gift that - at that age - meant the world to us.

So I dug around and was able to come up with a few toy-store sanctioned gifts that allowed us to advise doting grandparents and relatives, insistent on traditional gift items.

Mom and Dad thought we'd try something fun. We took her to Target (she loves it there - like the rest of us), and told her to pick something out for herself. Anything (well, almost anything.) She held my hand and led me around the store. The only somewhat typical choice - the red bouncy ball - came from the middle aisle as we brisked right past the toy section.

Obsession Safety Checklist

When I say my child is obsessed with doctors, dentists and medical procedures, you probably think I'm overstating it. Perhaps you were the mom glaring at me in Target when I screamed at my daughter: "No, I will not take you to the doctor today!" If so, I refer you to this post: All Kids Do That: Obsessions from the fabulous "All Kids Do That" series over at Yeah. Good Times. (Update: the Expo obsession finally did run its course. However, healthcare appears to be a keeper.)

Got it? Now, obsessions tend to overtake every activity. Somehow, everything comes back to the obsession one way or another. (Isn't that kind of what makes it an obsession?)

So, therapeutic and behavioral interventions aside, here's a look at some safety steps one should take to protect a child, a family, and a budget from little obsessive junkies seeking a fix. For discussion purposes, we observe my 8-year-old daughter's inexplicable and precocious interest in all things medical....with an even sharper focus on dentistry.
Steve Martin as Dr. Orin Scrivello - Watch this clip!

  • Lock phone. She will navigate to my contacts and call the dentist's office. She can't talk, so not much will happen, but it just doesn't seem like a good idea.
  • Block YouTube. She probably can't spell monkey, but she correctly keys in phlebotomy (could you?). And you don't even want to know about the "related" videos that are recommended when one searches for "tooth surgery." Redirect to cutesy tooth fairy cartoons, perhaps? Don't insult her.
  • Set iPad restrictions. Wow, there are lots of  bad apps out there. And they can be expensive.  She says, "Free Free" and hands me the iPad to type in my pass code for the purchase. Not so fast, little girl, but nice try. Critically important: Don't forget to turn off in-app purchases lest you inadvertently are the proud new owner of a pair of extra cartoon pliers to yank out cartoon dog teeth. (Pulling teeth out is a specialty of hers when playing Virtual Dentist.)
  • Purge photo stream. The multitudes of doctor/dental practice logos she enjoys looking at on the Internet are harmless, but...graphic, diagnostic stills of various stages of dental disease? A kid would be better off watching The Walking Dead.
  • Purchase more toner. Those logos I mentioned above? She loves those. Also fun: printing and copying. She likes to print the logos "big" and make 10 copies. (Why 10? Why not.) That's a lot of toner right there, my friend, but NOBODY wants to run out of toner. If you run out of toner, you can expect a tantrum from any number of family members. Including yourself.
  • Lament the under-representation of age-appropriate books exploring what happens DURING medical procedures. We've stumped many a librarian...even those within the actual children's hospital.
  • Trust your instincts. So, after weeks of her whining, complaining and tugging at her teeth, you cave and schedule an emergency appointment. How bad would you feel if she really was in pain? I mean, she is largely nonverbal, and she's been unrelentingly typing, approximating and signing "dentist," "pull teeth," and "hurt." Perhaps a visit to the dentist will quell the obsession beast, at the very least. You think to yourself, I doubt there's anything wrong, but what if...? Sucker! (While there, confirm that the tooth she keeps wiggling is indeed a baby tooth and not a permanent one.)
  • Hide keys: Alas, no dentist appointment today...but why should that stop us from trying to go anyway?
  • Scout out new locations and routes in advance: if there is a dentist's office nearby, proceed with caution. You know what looks awesome?     

THIS PLACE:


BUT IF THIS PLACE:

 is next door, you will spend your entire allotted hour trying to reason about why jumping is preferable to drilling. Well, to be clear, YOU'RE trying to reason; she's screaming.
  • Avoid anyone with bandages, scabs, bruises, etc. She is overly curious and not afraid to explore hands-on.
  • Master the art of waving. My best parenting moment? "No, sweetie, we can't go inside the children's hospital today, but we can wave at it." Since then, all trips out of the house involve passing and waving at some sort of medical establishment. I can't even explain this properly as it's so very weird. Just trust me when I tell you that as a meltdown avoidance technique, it's negotiation gold.
  • Supervise On-Demand picks. Like many kids, she knows her way around a remote control. She searches for "teeth." Sure there's a tolerable episode of Bubble Guppies called A Tooth on the Looth! and you might even shamelessly pay the $1.99 to purchase it for 24 minutes(!) of peace. But that's not quite what she had in mind. Unfortunately for her, I conclude that watching Corbin Bernsen's fine work The Dentist could scar ME for life.
I know what you want to say, because I hear it all the time: "So maybe she'll be a doctor." I cringe... because we both know that, sadly, she won't. Still, if she somehow does become a healthcare professional (never say never), I imagine her mentor would be Dr. Orin Scrivello, So, thanks for your encouragement. I might even arrange for you to be her first patient. Good luck.

A Broken Keurig, Instant Grits & Other Travesties: A Morality Tale


At its heart, autism is a communications disorder. The DSM-IV checklist lists "qualitative impairments in communication" as a diagnostic criterion. 

My daughter? Check. Plus.

She also has - by anyone's diagnostic standards - a voracious appetite. I wouldn't call her a "picky eater" (tree bark, anyone?), but she can be fickle and demanding at times. Girlfriend knows what she wants.

So, chasing her into the kitchen yesterday, I found her ripping open a package of instant grits. (I didn't even know we had that!) Ever self-sufficient, she proceeded to dump it into a disposable, hot cup and pivoted around to, apparently, run hot water through the Keurig to complete her snack.

I know it sounds like she's an independent, little chef, but we do not allow her to operate anything in the kitchen alone. We know better. So does she!

What she didn't know was that our beloved Keurig didn't work anymore (boo hoo!), and I had removed it to try and return it. 

I wish I could have captured the look on her face. The Keurig might possibly be the most important, frequented appliance in the house. Poof! It was gone!

What would your 8-year-old do? I imagine, at this point, many would call for Mom (I was standing three feet away), ask where the machine went, demand help.

I watched with curiosity. Ever resourceful and independent, my daughter simply turned to the refrigerator and  filled the cup with water from the dispenser.

Of course, now her grits are ice cold (as well as completely over-saturated, but that's besides the point). 

Now, does she ask for help? Uh uh. Oh, she's very frustrated, yelling a little, but she just decides to move on to the microwave - where our story must end with an angry intervention. No, my autistic 8-year-old is not allowed to use the microwave.

The whole incident reminded me of my years-ago Floortime training...learning to create a "circle of communication," a reciprocal, back-and-forth interaction. 

Nope, not a single circle of communication going on here, but there were numerous opportunities to create them.

One Floortime strategy is to engage a hard-to-reach child using a "playful obstruction." Do something that will get their attention! Wear an unexpected, silly hat. Join the child while they are lining up cars, and then make the cars crash. Any resulting eye contact, interaction or response to the action counts toward your Circle.

No hot water? No coffee? You certainly have my attention! 

Yet, communicating with me to help her solve her problem didn't even occur to her. 

While she's come a long way, communication always will be hard for her. She's severely apraxic, so the actual act of speaking clearly is a huge obstacle for her. Sign language and augmentative communication devices like her iPad offer wonderful alternatives, and I am grateful every day for them. However, they only work when a person is motivated and interested in communicating. 

Wouldn't you agree that communicating and interacting with me to solve her devastating, instant-grits problem was the most likely, obvious and best course of action? 

Unfortunately, for her, it also was the hardest. 

Collateral Damage

When you see my daughter, I am rarely far behind.

I remain Mommy on the Run, following her unpredictable lead and trying to channel her enthusiastic energy safely and "appropriately." For example, while I respect and support her interest in teeth, I cannot allow her to put her hands in others' mouths. That's a social confine that - no matter how "neuro-diverse friendly" you are - simply will not bend. ***


I've noticed a shift, however. A pattern that - in my completely non-expert opinion - signals marked improvement in her understanding and engagement in our world.

In the past, an hour with my sweet, Tasmanian Devil might result in random acts of destruction aimed at furniture, kitchens, walls, cars and so on. Turn your head for a second, and you might be fishing her or her iPad out of the toilet. Theorists advise that every action really is a form of communication - especially since she's largely nonverbal - but translating some of these doozies was nearly impossible...except to acknowledge that she was frustrated (and so was I).
With appreciation for Sunday Stilwell
http://www.autismwashere.com

Moreover, I will not discount my daughter's proclivity for mischief. Even without the big A, she no doubt would be a charming rule-breaker. So, as you can imagine, my extreme-helicoptering was required simply to keep the house in one piece. 

Lately, while things are still getting broken and such, I can see some clear rationale to her actions. It's no longer me muttering to myself that she must be bored, frustrated or sensory-deprived.

See, we've loosened the metaphorical leash - just a bit. We recognize that she knows more than ever when she's doing something inappropriate. She'll probably still do it, but I have fair warning since she'll give me that sneaky smile before dashing off. So her actions are closer to the the "all kids do that" behaviors you might read about in "What to Expect" articles. So most days, while she requires infinitely more supervision and direction than your "average" eight year old, she's able to at least spend a few minutes independently - in the bathroom, reading something, watching something, or YouTubing (as long as I listen closely for sounds of bloody surgical segments, that usually are accompanied by her giggles and a gleeful, "ewwww").

Recently, during a moment of freedom, she raced upstairs and grabbed her father's electric razor. It occurred to me afterwards that we were talking about shaving (probably me wondering when I last shaved my legs). Another time, we instructed our son to go brush his teeth, and I soon found her in the bathroom, squeezing a tube of toothpaste all over my toothbrush.

My laptop's monitor is shattered because of her interest in using MY computer, rather than her very own iPad.

Here's a good one. She drew on our inside window curtains recently, something that might elicit shock from some parents (clearly not autism families). But that's not even the significant part. What's interesting is that it was not a childish drawing. She'd outlined her desired plans for the day in a simple list form ("doctor" included), much like on a whiteboard.

Then this happened. I've been spending a lot of time at the eye doctor lately...my aging eyes are rejecting my beloved gas-permeable lenses of 30 years and I'm trying to switch over to soft. "Putting my contacts in" has become a process instead of the usual pop in/pop out. Yesterday, when I went to put them in, I found one missing and one dried out from exposure. I'm not sure whether she was attempting to clean them, wear them, or "help" me, but I suspect it was soon after a mention of said lenses.

This new pattern of damage is of a different variety than her earlier destruction. She's listening! She's engaged! She's trying to be helpful! She's imitating mommy and daddy! 

Now I might have mentioned before that one of the best things ever taught to my daughter was mimicry (see Do Children With Autism Lack an Ability to Imitate?). I am not trying to make her into a robot; she simply must learn how to learn. It's critical that she knows how to copy vocal sounds (PROMPT has been so helpful), gestures (to nod yes or no), and actions (brushing teeth). There's a lot of research out there about mimicry as a communication foundation. 

So my epiphany here is that while I'm still Mommy on the Run (or Mommy with the Hoarse Voice from yelling and repeating myself), the destruction is different these days...encouraging even. She's interacting with our world...in the now! She's communicating by participating.

The is the kind of damage I completely welcome from her. The frustration, inconvenience, cost and toll of my daughter's destructive activities can be attributed to collateral damage: an unwanted but necessary byproduct of a greater strategy.

***Footnote:  Instead, of touching strangers' teeth, she spends hours on her iPad watching and playing dentistry and medical-related media. We "wave" at every dentist and orthodontist office that we pass. She loves to play on http://mydoctorgames.com. Hey, it's better than her phlebotomy phase, for sure!

Holiday Gift Guide

Shhh. I am sharing this retroactively. I realize you probably haven't noticed (and I'm foolish to point it out) but my blog feels pretty time-worn at the moment. Let's imagine it on vacation, maybe on a breezy beach with mai tais in hand.

Still, December looks so very lonely in the timeline. So for the record, I did post in the blogosphere in December. Just not here. Problem now corrected. 

Follow this link for your outdated, irrelevant BUT STILL HIGHLY COMPELLING story about gifting on your winter holiday of choice. Actually, er, who doesn't want to start planning for next Christmas, right? Or perhaps for your child's birthday?



Things Aren't Always What They Seem: A Lesson in Generalization

One afternoon, my boy nonchalantly relayed this story to me:
Child X is playing a game on his laptop, and Children A and B are oohing and aahing over his shoulder. My curious son joins in to watch, but Child X covers his screen and says:
"You can't watch me play. Go away."
OUCH! My bully radar soared to red alert; my fangs and talons were itching to strike. Yet, I tried to remain calm and rational. I took a breath, and reminded myself that things aren't always what they seem.

I probed a bit: What EXACTLY happened...How did that make you feel...What did your friends do/say...Why do you think he said that...Who the hell is this rotten kid anyway?

At this point, I started to get a bunch of I don't remembers followed by a Can I please just play my game now.

Between you and me, let's just agree that kids aren't so smart. How could they be? They're uneducated, totally inexperienced, and have underdeveloped, unseasoned brains with absolutely no context for their thoughts. Now, pair that fact with the idea that a number of children with autism - as well as some other neurological conditions and learning disorders - struggle with "generalization."

Generalization, as I've come to understand, is the ability to apply something you've learned across settings, circumstances and situations. A common example is: You teach a kid not to cross the street alone. Does the child understand that lesson applies to all streets or just THAT particular spot on THAT particular street? It's an extraordinarily different way of thinking.

You know what makes generalization even more challenging? Rules. Especially rules with exceptions or inexplicable, social expectations. So now, you tell him, go ahead and cross that street when the light changes. Or at the crosswalk. Or if you look both ways. Or if there's a guy wearing a yellow hat waving you over. OH MY GAH, it's so confusing!

With that mindset, a kid so easily could "disobey," get it wrong, or just meltdown at the thought of trying to keep up with all these street-crossing regulations.

How revealing it can be when children actually explain their unorthodox behavior - which, often, seems completely rational and logical in their own minds.

For example, it was driving me batty that my OCD-stricken son's hands always were wet. He was struggling with classic germ phobia, and was washing them A LOT. (I'm pretty sure patterns and rituals were involved, but he's stealthy about that.) Of course, I assumed he simply forgot to dry his dripping hands. When yelling didn't fix that, I then got him to agree that it was because he didn't think the towels were clean enough (I get that), so I fancied up his bathroom and mucked up the environment with disposable hand towels. He still dripped all over the place.

Finally, when the lights were low and the mood was right, he explained that, since our treatment plan involved restricting hand-washing, as well as limited discussing and reassuring him of cleanliness, he prefers to keep them wet because then he is sufficiently reassured that they are clean. Oooooooooh, of course.

Similarly, my friend over at Snagglebox (who just wrote a fantastic post about literal thinking) shared this anecdote:
My son tells me that he finds playing tag stressful because, "When you touch somebody else to make them 'it', technically the energy is bouncing back and forth between your bodies as you touch. So how do you know who is actually 'it' when you let go?"
Guess who probably avoids playing tag...and imagine how this would play out if he couldn't explain himself. 

Does your child also suffer from "perceived injustices" (a term I borrowed from my friend at Try Defying Gravity)? My son once spent a year snubbing a really, sweet kid (who had absolutely no idea he was being snubbed, mind you) for something quite innocent he said that my son found hurtful. He told me about it years later. And this is my verbal child!

My daughter is required to navigate the world without the ability to express herself or explain her behaviors.

We were having lunch at a particular friend's house last week for the first time in several years. My autistic daughter went all Taz on us - screaming, running around like a whirling dervish, and repeatedly asking for dessert. (I was reminded why we don't have lunch at friends' houses more often!)

However, using my parental telepathy, I finally figured out what was going on. Last time when we were at this home - maybe 3 years ago - she was served a particular cookie. Clearly, she wanted/expected that same cookie to be served again. Because - in her orderly brain that seems so chaotic to the rest of us - that's the pattern established in her memory. This house = delicious cookie dessert. That's the rule. Unfortunately, others probably just see an out-of-control kid.

Now, let's circle back to the brat bullying my son. You'll never believe what really happened. Miraculously, my little talk with my son paid off. He returned to school, and somehow "discussed" the situation with Child A and Child B. Together, they approached Child X, who apparently meant no ill will. He was simply following THE RULES.

What he said: "You can't watch me play. Go away."
What his mother had told him: "Don't let anyone you don't know use your computer or watch you work on it."

Child X (in another class) already knew Child A and Child B. He'd never formally met their other classmate - my son.

Oooooooooh, of course. See? Things aren't always what they seem.

Guest Post: My Family Just Doesn't Get It

Editor's Note: I've opted to keep my blog identity separate from my IRL self for several reasons (you can read about them here). Overall, I stand by that decision, even though anonymity is not easy...not to mention nearly painful when I have nothing to show for a day's work! Others in the special needs blogging world do not hide, and have found that everyone from their school district administrators to their mothers-in-law offer unsolicited feedback on their blog. It's cathartic, influential...and sometimes, they tell me, restrictive.

Here, a mother shares her disappointment in her family of origin's response to her daily autism reality. For her own, personal reasons, she is not ready to share her feelings with them (at least in this forum). So, I offered her - and other "out" bloggers - a quite, safe house, for when they have something to say that's too raw, too personal or too whatever for their own blogging space. She has a fantastic blog, but I cannot tell you about it here, because she has now joined my circle of trust.

I'm delighted to welcome my first guest blogger. If you are interested in guest posting (anonymously or in all your glory), please email me at whacamolelife@gmail.com...because I really could use the day off. 
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My Family Just Doesn't Get It

Since my husband had to work long hours all weekend anyway, I decided to take the boys on a five-hour journey across state lines to see my family. I'd like to go back to when I made that decision and talk myself out of it.

I know at the time, I was feeling a bit homesick and nostalgic. I missed summers as I knew them. I missed the big extended family gatherings. I missed being on acreage. I can officially say I am now cured for awhile.

I had told the family prior to the visit that the boys are autistic. That the little one has several severe food allergies. They said, "OK." They even seemed to understand a little. It seemed too good to be true. I should've known then that I was walking into a trap.

When we arrived, I got peppered with questions about the boys and autism. Almost everything I said was met with, "but most kids are like that." If I heard that phrase again, I was going to throttle someone. Thankfully as it became less and less apparent that "most kids are like that," they stopped saying it.

They may think I didn't notice the looks, but I did at meals. Yes, I let my younger child get up from the table before everyone else was done eating and go play. Yes, I made him a separate dinner. It was for our collective sanity in the situation. Just be thankful my older child not only tried what you cooked, but ate it all. Normally he'll take a plate full and then decide about five bites in that he in fact doesn't like it. This is only after he's sat and played with it long enough for the plate to get cold and icky.

Newsflash: kids get dirty when they play outside. No, I did not allow my children to play in the pond. There are snapping turtles in it, and the top was covered in algae due to the hot, dry weather. Yes, contrary to what you think, I was watching them ALL day. In the off chance I went to pee (heaven forbid), the cousin whose child they were playing with had an eye on them. Plain old dirt causes black feet too, and I find it funny that I had to wash them to let them in the house for a bath.

I got an eye-opening experience to what a gossip you are, dear aunt. I can only imagine what you will be saying about us since we left. I really don't care. I bent over backwards to try to make sure my boys conformed to your anal ways (even by their OCD standards). It was just too exhausting to stay with you. Next time, we'll either choose someone who remembers what it's like to have children (and central air), or we'll just get a room of our own at the nearest hotel. It will be best for all involved.

When someone didn't remember us, and you reminded them we're "the PA relatives," I am now almost relieved. I am over five glorious hours away from the gossip and drama that you all endure - living within about a 20-mile radius of each other. I am homesick for my family no longer, and I am thankful to my one aunt who was packing a flask and made me a gin with a splash of tonic at the family picnic to make my stay a little more bearable.

All Kids Do That: Obsessions

I'm willing to bet that even if your kid's issues aren't as screwed up complex as mine, you've heard this phrase before: "Oh, all kids do that."

I know it's meant to be comforting. But to an anxious parent - who has bravely put their worst fears out there - I posit that it instills reassurance maybe 1-3 percent of the time.

The other 97-99 percent of the time, it likely does the opposite. It can belittle, demean and certainly invalidate a parent's instincts.

My child's speech seems to be regressing!
"Oh, all kids do that. As one skill develops, others might go under the radar. Give it some time."

My child is waking up at night with an excruciating headache.
"Oh, all kids do that. He's probably having nightmares. Or allergies. Give it some time."

Wrong and wrong. 

Today, I'm sitting at the cool kid's table doing my first guest post. Hooray! Jill Smo conceived this awesome "All Kids Do That" series on her snarky, very real blog "Yeah. Good Times."

Head over there to check out her pad, the brilliant "All Kids do That" series, and my very first, bloggy guest post. See you there!