My Whac-A-Mole Life: anxiety   

The WHATIFs Grow Up

The whatifs  have a way of sneaking up on us, edging their way in through cracks in the veneer.

We ward them off with a smile on our face; with sleeping pills; with best-laid plans.

Some of us, vulnerable to anxiety's Machiavellian maneuvers, have learned to ignore the whatifs, or rather deny them. We stay busy to hide from them. We run. We play. Or we use exhaustion as a means of defense (they can't attack while we sleep).

Still, the whatifs  are patient - content to lie in wait, satisfied knowing they soon will have the chance to stretch their tentacles, regenerate and multiply.

A movie theater shooting. A marathon bombing. A child abused by a teacher. An autistic girl found face-down in a lake. A friend diagnosed with late-stage pancreatic cancer.

Each of these tears down our defenses and allows the whatifs to burrow in...stronger, scarier, realer.

Shel Silverstein/Where The Sidewalk Ends
The night before a school camping trip, my son asks, "Whatif  I sleepwalk into the cave and get eaten by a bear or lost forever?" What an outlandish whatif,  I think, instantly realizing that MY whatifs once were outlandish, too. Are they still?

It's much harder to combat whatifs when they've become so real.

The whatifs  no longer are about my own mortality or suffering. They dance around the people I love. Whatif  something endangers them? Or prevents me from protecting them? How can I shield my nonverbal daughter from a predatory world? Whatif  my son doesn't make it to the hospital in time when his shunt fails? Whatif  I abandon them, or rather, WHEN I abandon them in death? What will happen then?

Holiday Gift Guide

Shhh. I am sharing this retroactively. I realize you probably haven't noticed (and I'm foolish to point it out) but my blog feels pretty time-worn at the moment. Let's imagine it on vacation, maybe on a breezy beach with mai tais in hand.

Still, December looks so very lonely in the timeline. So for the record, I did post in the blogosphere in December. Just not here. Problem now corrected. 

Follow this link for your outdated, irrelevant BUT STILL HIGHLY COMPELLING story about gifting on your winter holiday of choice. Actually, er, who doesn't want to start planning for next Christmas, right? Or perhaps for your child's birthday?



Managing Your Child's Medications: A Lay-Parent's Guide

We're on drugs. Yep, you name it (duh, legally prescribed drugs), we've probably tried it. I can't say I'm as drug-savvy as Nancy Botwin, and we certainly don't grow or sell them, but we do manage them. Doses, prescriptions, times, counter-effects, interactions, half-lives - it's a lot to take in when you're just trying to keep a kid from scratching your eyes out.

This post is NOT about the pros and cons of medicating children. It's a highly personal, emotional issue for many of us, and I don't wish to debate that here. Obviously, medications are not always the answer. Medications alone rarely are the answer. And unfortunately identifying the RIGHT medications and dosages often can feel like chasing a carrot: just when you think you've nailed it -bam! - the kid has a growth spurt; or completely new symptoms; or they stop making THAT pill in THAT dose; or something else.

Nonetheless, I chose to add medications to our treatment plans, and any reservations I had quickly dissipated after witnessing undeniable, SIGNIFICANT results.

Of course, that doesn't mean I love doling out psychotropic medications any more than I like my kid's melatonin habit. However, I defer to the age-old wisdom: if your child needs a wheelchair, you provide the wheelchair. Yes, you also offer therapy, rehab, counseling, sporn flushing, and so on, but you must provide the wheelchair.

Anyhoo, I've become somewhat of a preachy busybody on this topic because I screw up a lot, and it makes me feel much better to pretend I've learned something from it. So, as much as I support the use of  psychiatric medications when needed, I am militant about the following pointers. If you have others, please share them below, because I'm pretty sure we will continue to be a poster household for Big Pharma for many years to come.

Wordless Wednesday: Pressure Vests - For DOGS!

Most of us already know about pressure vests, right? These vests - often weighted - provide proprioceptive feedback that (theoretically) calms and grounds kids with autism, ADHD, sensory processing disorder, and so on. Weighted blankets are a big thing, too.

Whenever an OT introduces this type of vest to my daughter, I can't help but wonder whether the benefits outweigh the fashion fail.

Well, never mind all that. Have you seen THIS? It's Thundershirt for your special needs pets, and I couldn't make this stuff up. For more information (and I assure you, I get nothing out of this click), check out www.thundershirt.com. Don't miss the free embroidery!


Screenshot from www.Thundershirt.com
Click to see Video
And for cats too!
   
More from the site:
THUNDERSHIRTS ARE GREAT FOR:
» Fear of thunder/fireworks
» Separation anxiety
» Travel anxiety
» Crate training
» Problem barking
» Hyperactivity
» Leash pulling
» And more!

All Kids Do That: Obsessions

I'm willing to bet that even if your kid's issues aren't as screwed up complex as mine, you've heard this phrase before: "Oh, all kids do that."

I know it's meant to be comforting. But to an anxious parent - who has bravely put their worst fears out there - I posit that it instills reassurance maybe 1-3 percent of the time.

The other 97-99 percent of the time, it likely does the opposite. It can belittle, demean and certainly invalidate a parent's instincts.

My child's speech seems to be regressing!
"Oh, all kids do that. As one skill develops, others might go under the radar. Give it some time."

My child is waking up at night with an excruciating headache.
"Oh, all kids do that. He's probably having nightmares. Or allergies. Give it some time."

Wrong and wrong. 

Today, I'm sitting at the cool kid's table doing my first guest post. Hooray! Jill Smo conceived this awesome "All Kids Do That" series on her snarky, very real blog "Yeah. Good Times."

Head over there to check out her pad, the brilliant "All Kids do That" series, and my very first, bloggy guest post. See you there!




The Procrastinator's Guide to Vacation Planning (A Play. Abridged.)

Roles: Mother  Father  Son
Scene: Utter Chaos

September 2011: 
Look, both kids have spring break at the same time this year - starting on March 30th. Isn’t that great? We should plan a vacation! Because staying home alone with both kids is already giving me the tremors.
October:  NA
November: NA
December:  NA
January 5, 2012:  
Brr. Let's talk about going to the beach on Spring Break. 
Remember last year, when we went on a beach vacation for my birthday instead of having a party (score one for mom)? Can we do that again?
Sure!
January 10: So which beach should we go to? Fly? Drive? Lots of possibilities, but so many factors to consider.
·    A beach that's not too crowded BUT crowded enough that our ruckus doesn't disturb too many people.
·    Will everyone be in a decent enough mood?
·    Can we tolerate a long drive or a flight?
·    What will be the obsession du jour? Will it be transferrable?
·    Where are my migraine pills???
January 11: 
Hey mom, I Googled beaches and wrote down a list of the ones I like. Look at this one. And this one. Aren’t they perfect?
January 15:  
So where are we going?

Do your homework. 
 January 20: 
Dad, I made a list of pros and cons for each of the beaches and hotels we talked about. What do you think?
January 25: A Text Exchange
9:52 am: What do you think of Puerto Rico?
10:25 am: Have you gone insane? Who do you think we are?
11:02 am: We rarely go on vacation (rarely leave the house). We should go all out. We’ll need to update our passports. Can you take care of that this week?
11:03 am: Have we met?
February 5: 
Mom, Are we REALLY going to the beach? 
Of course.
When will we know where? 
By your birthday. Promise.
February 9: Text:  We need to talk about vacation.
February 11: Text:  We need to talk about vacation.
February 14: Text:  We need to talk about vacation.


Birthday comes and goes.
March 9: An email exchange
2:07 pm: If we’re really going anywhere, we should make plans.  I can use points from here, book this ticket, use a companion ticket and we can fly first class to Miami. We’ll just have to take the 8 am flight.
2:11 pm: Fine. Just book it. I don’t want to talk about this vacation again until we’re there.
March 11: A text exchange
We need to talk about vacation.
Didn’t you book it?
It was too complicated. I couldn't do it online. There are only a few seats left. And not ONE of them is together. 
Speed-dials phone. We’re driving anyway. No way can I get our act together enough to fly. That involves actually packing in suitcases. In advance!
March 16: 
Want to check out the new places we are considering within driving distance?
No, I’ve learned my lesson. Tell me when you make a decision.
March 19: Text:  We need to talk about vacation.

March 23:
 
Have you decided? I can’t wait to go in the ocean and jump the waves. 
Hmm, Place A and B are great beaches, but might be too cold. Spend next hour trying to convince son that being on the beach with a jacket is just as fun. No can do.
March 25: 
Google Surf Reports at various locations. Call hotels and ask if anyone is swimming in the ocean.
One hotel receptionist: Sure, off and on. But I probably wouldn’t.
Can you connect me to reservations? 
Book hotel. Hooray!
March 25: Daughter packs suitcase with bathing suits. Only. Hour-long tantrum ensues when told we are not leaving quite yet. Repeat exercise daily until departure.

March 26: A Text Exchange
We can still drive to Miami if we stay somewhere else on the way. Extended email description of route, hotel stops and timing follows.
Is there something wrong with the reservations we made yesterday?
No. Just looking at all the options.
NO MORE OPTIONS! PLEASE!
March 30: Depart for vacation. Start planning for next spring break.

END SCENE

I Think I've Been Shot

"Mom, I think I've been shot."

I'm dashing around, trying to complete one of many tasks that will, inevitably, remain incomplete. I dejectedly turn my attention from the half-loaded dishwasher, the disinfectant wipes I tore upon hoping to at least wipe down the table, the online banking site open on my laptop, and a wistful eye on Laundry Mountain.

A deep sigh (it's mine).

"I promise you, you weren't shot," I say flatly.

While you might think I should sound more concerned, please understand that while my home is a disastrous place for many other reasons, the odds of being shot in our quiet, suburban neighborhood are really quite low. Occasionally we will hear abrupt, loud bangs, but they are - without exception - industrious neighbors hammering picket fences, a recycling truck or someone installing underground sprinklers.

My son continues, deeply concerned. "Mom, I need immediate treatment. Come quick." He holds up the body part in question so I can examine it. It's his pointer finger...on which I see absolutely nothing unusual. Upon closer inspection, I suspect he's complaining of a hangnail or a paper cut. I have no idea. But more than a bandage, he needs reassurance that he has not, indeed, been shot.

This started a couple of years ago. He's always been a clingy, anxious kid, and he began taking Prozac long before I care to admit. The medications are what allow us to actually leave the house, though. For as long as I remember, he was scared of birthday parties, costumed characters, darkness, certain songs, certain movie scenes. Colic has nothing on the crying spells we endured when he was a baby. Sometimes I could identify the fear-inducing agent; other times I had no clue. Separation anxiety also entered the mix.

Unfortunately, this particular phobia has proven stubborn and persistent. Sadly, I think he will be fighting this one for the long-term.

At 10, he is a smart, creative, affectionate and heartful child. People are constantly telling me that he is special (special like sweet and sincere...not like in the euphemistic sense), that he touches their heart. He really is good down the soul. Unfortunately, that purity and kindness coexists with deeply rooted anxiety and fear. His intelligence counter-intuitively exacerbates the symptoms, fueling his imagination, and proving to be tragically debilitating.

When it comes to the WORRIES, we are at first patient, sympathetic, supportive. We consult with psychologists, specialists and cognitive behavioral therapists, trying a variety of methods and antidotes: worry time; absurdities; talk therapy; role playing; journals; ignoring; exposure; catchphrases; rules; lockboxes. We send the WORRIES packing. We feed them to the fishes. We read books about tomatoes, worry hills and buckets (he has now hidden the books and refuses to read even one more).

We are proud of him for his perseverance in overcoming his anxiety enough to keep going. He triumphantly  reports that the good parts of the day outnumbered the WORRY parts. We're relieved and slightly concerned that our son insists and achieves in keeping his fears private, although we question what classmates think when he randomly groans, dramatically clutches his throat and checks his own pulse during math.

His hypochondria begins with himself and extends to those he loves. To him, a shaving cut indicates an infected limb that must be amputated or I will die. If his father is running a few minutes behind, his "go-to" reaction is that his father must be the victim of a fatal car accident, not simply traffic. He touches the dog's nose to see if it feels colder or hotter than yesterday. His sister is not breathing rhythmically enough in her sleep. A little rain indicates the onset of another Hurricane Katrina.

We have a few possible explanations for what triggered this extreme condition, but nothing as dramatic as one might think. We're very blessed that those closest to us are alive, albeit with the various ups and downs of the living. Our son does have a congenital neurological/medical condition that clearly is using his brain as a playground. In private, we call him "best case scenario," because we know we are fortunate that these symptoms would be considered "high functioning" on the spectrum of his condition.