My Whac-A-Mole Life: How Old Is She?   

How Old Is She?


The question seems innocent enough, right? Not even close. See, when it comes to a giant, 7-year-old nonverbal child with autism, it’s a loaded question. In fact, depending on the inquisitor and tone, it’s like the word “set” (which possesses the most definitions/uses in the English language - rumored to be in the 400s!).

So, allow me to help translate it for you, since I imagine you won't find these definitions on Wikipedia.

HOW OLD IS SHE? (Tone: gentle, kind): I know she has autism because I recognize it. I am asking her age because I am empathetic and sensitive. I’m hoping you will volunteer the information so I can tell you all about my sister’s/cousin’s/neighbor’s kid with autism. I might offer you a hopeful message or simply a knowing, supportive smile.

HOW OLD IS SHE? (Tone: sweet, cloyingly sympathetic):  I can tell something is wrong with your child. She is not acting anywhere close to her age. I’m slightly nosy and want to appear friendly. I will smile pitifully at you and probably follow up with something like “bless her heart."

HOW OLD IS SHE? (Tone: rushed, alarmed):  I have (or am very close to) a child with special needs, and I am comparing our children. In an instant, I have assessed whether yours is older/younger than mine...yours is speaking better/worse than mine...yours is higher/lower functioning than mine. This comparison is not at all like the competitive nature of suburban, prep-school playgrounds. It’s more about survival, hope and support. Occasionally, resource ideas and therapists’ names will be swapped.

HOW OLD IS SHE? (Tone: stern, accusing):  I have no idea what you’ll answer but it doesn’t even matter. She is way too old to be acting this way. I’m not really interested in hearing an explanation for her behavior. She’s bothering me somehow, and you should take her out of here. Have you no shame, lady? Just stay home if you can't handle your child.

HOW OLD IS SHE? (Tone: bright; speaker has child of similar age): Are our kids the same age? Will they be in the same class? I embrace and support inclusion...just not in my own daughter's classroom. Oh, I’ll say all the right things and use this as a teachable moment for my children, but in the back of my mind, I foresee that brat ruining my little dumpling's Hannah Montana birthday party. And I just KNOW that you ate too much tuna fish or drank too much while you were pregnant. Really, I’m just relieved that we escaped that statistic and you got the 1 in 88 instead.
***
There are many more. Perhaps one of my supportive readers will add to this list.

Meanwhile, for my sister mothers, I will share one last interpretation of this question which I learned only a few days ago. This scenario is a rare but exciting one. Last week I was asked the same, old question, but in a tone I’ve never heard before. It was like someone speaking in a foreign language. Here’s what happened.
Lady (Tone: casual, hopeful; Setting: store of some kind): HOW OLD IS SHE?
Me  (suspicious, unsure): 7
Lady (holding up two outfits): “Oh good. I'm buying a present for my granddaughter and thought they might be about the same age.”
(Addressing my daughter) “Which one would you like better?”
We were BOTH speechless this time. I explained to the lady that my dear, little girl doesn’t talk and doesn't really share the same interests as others her age...but still I repeated the question for her…and she pointed at one of the outfits (the uglier, more ostentatious one, of course). The lady thanked us sweetly and walked away.

I remained in place, somewhat flabbergasted but delighted that someone considered my daughter to be a typical peer of her age group. Best question ever!

***FOOTNOTE: Please don't EVER ask me “WHAT GRADE IS SHE IN?” There’s only one definition to that one: You are utterly clueless...(not to mention that I have absolutely no idea).


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14 comments:

  1. LOVE. THIS. Been getting this question (in all its subtle forms) more now that Bear's getting so tall... poor kid got stuck being the 3 year old who looks like a 5 year old with the social skills of a toddler.

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    1. Thank you!

      I had a friend who used to lie about her kid's age every week at Gymboree. She just couldn't take the looks each week when parents were discussing milestones far beyond her child's abilities. Personally, I couldn't take Gymboree at all! The whole thing just was depressing. I'd basically go home and cry after every class. Why torture ourselves?

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  2. WOW! I so love this and oh what memories it bring back like...I remember a Christmas eve when we were down town looking at the shops as the were closing for the day and a sweet little old lady with a bright smile and happy excited tone said to my son, "Santa comes tonight, what did you ask for?" and for a split second I truly thought a miracle would happen and my son would again speak, just has he had 4 years earlier when he was still normal. But no, autism had taken his voice and he only stood there quite and blank. I was too emo to tell her he was nonverbal and so autistic he had no clue anything special was going on...God love my husband, knowing I was on the verge of tears, he jumped in quickly and said, "Oh we are Jewish, he doesn't do Santa, but Merry Christmas to you and yours!" and shoved me as he spoke to get me moving away before I broke down and cried. I just broke out in laughter, what a save.

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    1. Thanks for sharing this story, Cheryl! Nice moves from hubby.

      This happens so often. Sometimes I just pause, waiting to see what will happen...will she actually answer the question? But then it just feels awkward, and I jump in. Tough stuff!

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  3. I LOVED this post. LOVED IT! Because that's how I feel any time something "normal" happens. I know when people are looking at Casey. Wondering why that kid is wearing those giant hunting earphones in a museum that's relatively quiet, or why my 2 year old doesn't crawl right and isn't close to walking. So when they ask their age, I'm categorizing them, too.

    There are times I haven't "gotten it" at all. My two year old has Down syndrome. A lady came up to me a while back and kept mentioning that Abby looked like her niece. Like she was willing me to ask, "does your niece have Down syndrome?" and I totally didn't get it. I did later. Like usual. I thought it was kind of a cool approach to finding out whether or not a child has Down syndrome. I'm always super impressed with people who genuinely want to know.

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    1. You know what? I just had a couple of aha thoughts reading this comment too! I've heard that "she reminds me of ..." several times.

      Thanks so much for dropping by! Love your blog too!

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  4. Hey, this is a super awesome post. I wish I had one to add, but it's too early and I still have brain fog.

    My son is very, very verbal, but he is hyper and immature (ADHD/Asperger's), so we often get asked that question. Annoying.

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    1. Thank you so much! Swing by again if you think of anything. Why are people so nosy???

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  5. Such a great post! You've nailed the reasons for asking & reactions of others. Good thing we can walk hand in hand together!

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  6. What a great post! I found your blog through FB (I saw some funny conversations you had with Lizbeth and some others). I love it!

    And it's so true how a harmless question like that can be asked in so many different ways with different (not-so-harmless) meanings. I love the last one though!

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    1. Thanks, Patty! We do have some funny conversations, alright! We're all so jaded, it can get pretty ugly. Thanks for finding me and look forward to getting to know you too!

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  7. great post. i am fairly new to the problem of how people see your child and how to deal with it, and am already over it.. i don't even know so much about it all yet (my son is only in the process of his Asperger's diagnosis) but I DO know my child. :(

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  8. Obviously I am late to the party but this made me cry like a baby. I am GoTeamKate and am so pleased you stopped by my blog.

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